Within most individuals there is an aspect of us that seeks to desire and be desirable. Perhaps it’s that part of us that likes to be showy and that likes to know that others find us attractive. Maybe what we really seek is acceptance. Going out is not only an opportunity to socialise with friends but to communicate with the wider community. Before HIV treatments came along it took the incredible courage from individuals to engage with their social world even though they may have been experiencing the adverse effects of HIV, like muscle wasting of their body. Their desire to participate to be included and to be accepted was very great.
The lesbian and gay community also accommodated the needs of HIV positive people where it could. For example, during the Pride WA parties and at Sydney’s Mardi Gras Party, there was a small dedicated ‘chill out’ space for people with HIV, where they could have a rest and then go back out and enjoy the company of their community. However, effective HIV treatments have meant the need for this space is significantly less for most people. At Sydney’s Mardi Gras Party the space has now evolved to be more inclusive – people with other disabilities are now welcome into the space. Perhaps this move is both significant and symbolic of the shifts in perception and reality for people with HIV.
Some of us make a choice to fly over east to participate in the annual Sydney Mardi Gras party. For some people with HIV this can have additional meaning. Sydney has a prevalence of HIV amongst gay men in the inner city suburbs approaching 15%, which means that one in six gay men have HIV. This can be somewhat liberating as the likelihood of meeting another gay man with HIV is high, reducing feelings of being isolated. There could also be a reduction in social anxiety, as Sydney- siders are more likely to know someone living with HIV and could therefore be more experienced with HIV disclosure. As person living with HIV from WA it’s also important to know that HIV disclosure is required before sex occurs according to NSW law.
It may be news to some people that having a HIV diagnosis does not automatically or forever more dampen our desires to go out and have a good time and party. Remember when you get back to Perth (whether you are HIV negative or positive) arrange for an STI check up, thus minimising the pool of STI at home. If you are going to Mardi Gras this year have a most awesome time!
Cipri Martinez
